Cystic Fibrosis Canada is proud to fund researchers who are committed to advancing our understanding of CF, discovering new therapies to treat CF and its complications, and enhancing the quality of life for those living with CF.

Research

Advocacy

Cystic Fibrosis Canada is a recognized leader in influencing public policy for better treatment and care, and for our ability to bring volunteer and staff advocates together — including people living with cystic fibrosis, caregivers, families, and members of the clinical team - to speak as one voice and bring about positive change.

CF care is multi-disciplinary and highly specialized. By supporting a network of 41 CF clinics across the country, Cystic Fibrosis Canada helps to ensure that the highest quality CF-specific care is available to the Canadian CF population. Accountability for this support is ensured through a formal accreditation process, which also promotes the upholding of national best practices.

The Canadian CF Registry (CCFR) is a comprehensive collection of national CF data used to support and improve our knowledge and understanding of CF. Participating CF patients who attend any of the accredited 41 CF clinics across Canada are represented in the CCFR. The achievements and growing success of the CCFR would not be possible without the involvement of CF patients and their families as well as the dedication and support from CF clinic team members.

Registry

Healthcare