Saturday, November 2, 2024
Westin Bayshore Hotel Vancouver
This year's theme a "MasCUREade: unmasking a cure for cystic fibrosis".
Don your best mask and join the fun!
*Dress code is formal
Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. At present, there is no cure.
CF causes various effects on the body, but mainly affects the digestive system and lungs. The degree of cystic fibrosis severity differs from person to person, however, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, will eventually lead to death in the majority of people with CF.
Typical complications caused by cystic fibrosis are:
More than 4,300 Canadian children, adolescents, and adults with cystic fibrosis attend specialized CF clinics. Half of the Canadians who died with CF in the past five years were under the age of 37.
For more information about disease management, please visit Living with Cystic Fibrosis.
Cystic Fibrosis Canada is proud to fund researchers who are committed to advancing our understanding of CF, discovering new therapies to treat CF and its complications, and enhancing the quality of life for those living with CF.
Cystic Fibrosis Canada is a recognized leader in influencing public policy for better treatment and care, and for our ability to bring volunteer and staff advocates together — including people living with cystic fibrosis, caregivers, families, and members of the clinical team - to speak as one voice and bring about positive change.
CF care is multi-disciplinary and highly specialized. By supporting a network of 41 CF clinics across the country, Cystic Fibrosis Canada helps to ensure that the highest quality CF-specific care is available to the Canadian CF population. Accountability for this support is ensured through a formal accreditation process, which also promotes the upholding of national best practices.
The Canadian CF Registry (CCFR) is a comprehensive collection of national CF data used to support and improve our knowledge and understanding of CF. Participating CF patients who attend any of the accredited 41 CF clinics across Canada are represented in the CCFR. The achievements and growing success of the CCFR would not be possible without the involvement of CF patients and their families as well as the dedication and support from CF clinic team members.
Have a question? We’re here to help. Send us a message and we’ll be in touch.
Thank you to our 65 Roses Gala Committee
Guin Sanderson – Chair
Frances Henry
Jocelyn James
Mary Sanagan
Victoria Thacker
Miriana Racchi
Useful links
Contact info
Useful links
Contact info